For as long as he can remember, Rehan* has always been smaller than other children in his class.He is born with an immunity compromised illness that has plagued him with skin fungus, troubled vision and continued bowel irritation. Both his parents have died from the same disease. His 17-year old stepbrother, who works as […]
Aldi’s Last Wish – What it meant for me & my husband
By Riswati, Rachel House’s community health worker During this Pandemic, travel restrictions have dramatically changed many of our lives. But for Aldi whose body is ravaged by cancer, and who longs to see his father before time runs out – how do we fulfil his last wish? It takes a village, a beautiful heart and […]
The Day When Dream Comes True
Think back when you were 18, what would have been your dream birthday gift? For Fandi*, who turned 18 last week, all he wanted was food that he could share with his neighbours. No cake or gift was necessary. Fandi was an active, and self-confessed “naughty” boy, until he was diagnosed with Rhabdomyosarcoma – an […]
A Day In The Life Of A Palliative Care Nurse – Ibu Susi
Spend a day walking in the shoes of Nurse Susi as she travels across Jakarta to provide palliative care for children living with serious and terminal illnesses. The photo journals are by Rachel House volunteers Janel Ang & Jevon Chandra. “These are for Risa* and Nina*. I know they will absolutely love them!”, says Nurse […]
A Friend in the Remaining Days of Life
The extraordinary Narasi.TV team made a heartfelt video about the work of a palliative nurse at Rachel House. Ever knew about the profession of palliative nurses? This particular profession is still rarely heard, even though its presence is crucial. Since 2014, Dadan Syafei has been a palliative care nurse. He has accompanied dozens of patients […]
A Soothing Balm – Didi’s Story
Little Didi* has been living with HIV and serious lung infections all his life – but thanks to the tireless support of nurse Rina and the team at Rachel House he can now breathe easy and focus on his homework. A story by Avril Delgado, who spent a few weeks of her summer holiday with […]
Palliative Care for Children Living with HIV in Indonesia
New research recently published by former Rachel House volunteer dr Suryadi Limardi – supported by long-standing Rachel House advisor Professor Edward Poon – has shed light on the increasing need for palliative care for Indonesian children living with HIV. Do you know that Indonesia has been one of the countries with the highest rate of […]
Oppo, Rachel House raise funds for children’s palliative care
Originally Published at thejakartapost.com Oppo Indonesia, the local subsidiary of Chinese smartphone manufacturer Oppo, and nonprofit organization Rachel House are currently raising funds for children’s palliative care until Aug. 31 at the Plaza Indonesia shopping mall in Central Jakarta. Palliative care is a healthcare approach for people with serious illnesses, aiming to improve patients’ […]
Semangat Hidup Pejuang Kanker Cilik
Artikel diterbitkan oleh Detik.com Sore itu Vino, bukan nama sebenarnya, tampak begitu gembira. Anak laki-laki berusia 8 tahun itu sangat antusias memamerkan koleksi ikan-ikan aneka warna di dalam stoples kaca. Seekor ikan cupang dengan buntut warna merah yang baru saja dibeli untuk mengisi akuarium mininya membentot perhatiannya. “Yang ini (sambil menunjuk ikan buntut merah) harganya […]
Art, Mobiles and Palliative Care
Originally posted at Maverick.co.id by Ong Hock Chuan What happens when you mesh together big hearts, creativity, a company with an emerging sense of purpose and a worthwhile cause? You get an exhibition of innovative Indonesian art, collectible designer wear, and a pop-up shop that succeeded within its first night to raise Rp103 million for […]