In the middle of the hot sunny day, nurse Ribka walked hurriedly along a small alley in one of the most densely populated areas in Jakarta. Her medical bag slung over her shoulder packed with the tools she needs for her patient today, while on her hand is a bag filled with milk powder and […]
At the tender age of 13, Aisyah* has experienced more trials than most children her age. Aisyah knows she has an illness that makes her different from her friends. To begin with, she has to take medications every single day for the rest of her life. Aisyah is living with a severe immunosuppressed condition that makes […]
For as long as he can remember, Rehan* has always been smaller than other children in his class.He is born with an immunity compromised illness that has plagued him with skin fungus, troubled vision and continued bowel irritation. Both his parents have died from the same disease. His 17-year old stepbrother, who works as […]
By Riswati, Rachel House’s community health worker During this Pandemic, travel restrictions have dramatically changed many of our lives. But for Aldi whose body is ravaged by cancer, and who longs to see his father before time runs out – how do we fulfil his last wish? It takes a village, a beautiful heart and […]
Think back when you were 18, what would have been your dream birthday gift? For Fandi*, who turned 18 last week, all he wanted was food that he could share with his neighbours. No cake or gift was necessary. Fandi was an active, and self-confessed “naughty” boy, until he was diagnosed with Rhabdomyosarcoma – an […]
The sun was peaking when we arrived. Amongst the sounds of a busy settlement, was one of a child’s glee. The little guy was in his school uniform, red and white. Even from a distance, I was drawn to his big smile and twinkling eyes. I would not have guessed that he had any care […]
Spend a day walking in the shoes of Nurse Susi as she travels across Jakarta to provide palliative care for children living with serious and terminal illnesses. The photo journals are by Rachel House volunteers Janel Ang & Jevon Chandra. “These are for Risa* and Nina*. I know they will absolutely love them!”, says Nurse […]
The extraordinary Narasi.TV team made a heartfelt video about the work of a palliative nurse at Rachel House. Ever knew about the profession of palliative nurses? This particular profession is still rarely heard, even though its presence is crucial. Since 2014, Dadan Syafei has been a palliative care nurse. He has accompanied dozens of patients […]
Little Didi* has been living with HIV and serious lung infections all his life – but thanks to the tireless support of nurse Rina and the team at Rachel House he can now breathe easy and focus on his homework. A story by Avril Delgado, who spent a few weeks of her summer holiday with […]
New research recently published by former Rachel House volunteer dr Suryadi Limardi – supported by long-standing Rachel House advisor Professor Edward Poon – has shed light on the increasing need for palliative care for Indonesian children living with HIV. Do you know that Indonesia has been one of the countries with the highest rate of […]