When one hears or read about palliative care, the first thing that comes to mind is often about pain relief, or respite from suffering. Yet on my first visit to Jani’s house, I could sense only festivities and joy in the room, and not one ounce pain could be felt anywhere. Jani and her mother were all […]
Blog
Ira’s Story – From Seriously-Ill to Superstar Singer!
Ira has been living all her life with a very serious illness, she has never known anything different. Like any other six-year-old girl, she loves to sing and dance. Her favourite movie, like many young girls across the world, is Frozen. Ira lives with her family in a small house in Jakarta. Late last year, […]
Adding Smiles to the Children’s Remaining Days
Yogi was 16 years old when he had a motorbike accident and broke his arm. About a month after the accident, his arm became swollen and he was in a terrible pain. The X-rays showed that Yogi had a malignant bone cancer, or Osteosarcoma. The doctors initially proposed to amputate Yogi’s arm to prevent the […]
Helping Fadil Get to Hospital for His Medicine
Fadil is six, and absolutely adores music. He is often seen with his toy guitar, singing and dancing to a tune. He lives with his parents in a rented room (measuring four by five meters) in a crowded area of north Jakarta. Fadil has been sick for as long as he can remember. When he […]
A Bold Step Towards Compassionate Community
On our 10th anniversary, Rachel House added bold strokes to the Palliative Care Ecosystem “tapestry” we have helped established in Indonesia, with the dream of making palliative care accessible and available for everyone living with life-limiting conditions. In 2016, our work and the influence of our work reached key stakeholders at all levels of the health […]
Ninety-Nine
Grace, a young doctor volunteering with Rachel House, reflects on her relationship with one of our young patients living with cancer, and how this patient has touched her soul. It’s a story about empathy, sympathy, friendship and loss. About plans, wishes and regrets. And about not having regrets. It’s about gratefulness. And it’s about the […]
Ivan’s Story
“Ivan weighed only 7.2kgs when he was referred to Rachel House in August – far below the normal weight for an 18-month infant. He was suffering from severe malnutrition and lung tuberculosis, and was being fed through a nasogastric tube, which can cause great discomfort.” As told by Nurse Ana – all photos Ryner St […]
“Uncle Dadan, why is the cat so big?!” – Teguh’s Story
Have you ever wondered what it is like for Rachel House’s nurses to care for children with life-threatening illnesses in and around the metropolitan city of Jakarta? Then read this story by Dadan, one of Rachel House’s nurses, about his journey in bringing love and care to Teguh, a five-year-old boy living with HIV. “The […]
A Light of Hope from the Community
In 2013, we began our efforts in bringing people together to care for those who are ill in their community. Today, Community Network in Palliative Care (CNPC) has spread across North Jakarta, where women, youth, community healthcare professionals, and Rachel House nurses work hand in hand to ensure that every child can enjoy their lives to the fullest. Watch […]
Dani’s Story – “I want to go to a waterpark and go down the slide with my mom”
Ever since he was a little boy, Dani had always wanted to visit a waterpark with his family. Before he had a chance though, he was diagnosed with a rare kidney cancer. He was only eight years old. When first visited by Nurse Yuni from Rachel House, Dani was silent and withdrawn, spending most of his […]