Lala, my daughter aged 6 and half, was diagnosed with advanced stage Neuroblastoma on January 12, 2009. In 2010, we became part of Rachel House’s family. This is our story.
Ananda was only six years old when he was diagnosed with HIV. Both his parents died before he reached his first birthday, victims of HIV, which they had unwillingly passed on to their son, leaving him in the care of his mother’s sister. Two months before his seventh birthday Ananda became increasingly unwell, and was shortly diagnosed with HIV.
Zaidin was diagnosed with Rhabdomyosarcoma in 2009 at Dharmais National Cancer Center. Since Zaidin’s mother passed away, his father had been his main caregiver – providing love and care for the boy.
Baz was 7 years old when he was first brought to our attention in February 2008. He had been sent home by his oncologist with poor prognosis of no more than a few months to live. He had neuroblastoma.
It all began when Siska came home from a 3-day camping trip with bad stomach pain and high fever. After multiple visits to doctors and alternative medicines, Siska was finally referred to Dharmais Cancer Centre where she was diagnosed with ovarian cancer with metastases to the kidney.
Netty was from Bengkulu. She wanted to go home to see the family that she had left behind 10 months before, when she and her parents came to Jakarta in search for treatment to battle her Non-Hodgkin’s lymphoma
Bayu was a cheerful and playful girl. Always singing and full of life. She was diagnosed with Retinoblastoma in her hometown, Magetan, a year before she arrived at Rachel House.
Tedi was taken ill in August 2007 with loss of appetite, dry throat and tuberculosis. Laboratory tests of the blood revealed abnormalities with eventual diagnosis of acute myeloid leukemia. In October 2008, Tedi was referred to Rachel House by RSKD as a homecare patient. By then, Tedi was bedridden and suffered from profuse bleeding from an open wound in the anus area, severe pain and nausea.
Adi was taken ill in August 2007 with loss of appetite, dry throat and tuberculosis. Laboratory tests of the blood revealed abnormalities with eventual diagnosis of acute myeloid leukemia. In February 2008, Adi began chemotherapy treatment at Dharmais National Cancer Centre (“RSKD”). Unfortunately, the treatment was not successful in keeping the cancer at bay.